To find out that your baby has a problem/disease that is incompatible with life is something that no mother (and father) should ever have to face. Its simply just not fair. Every now and then you hear stories of the doctors being wrong and the baby being born with no problems at all or mother's who have been told their baby won't make it to birth or will die shortly after having their babies and although they many have disabilities, still living.

I quite often hear mothers torturing themselves with feelings of guilt after terminating wondering if maybe the doctor was wrong and their baby would have been alright. There is simply no way to know. If you do have to make the decision to terminate or not i suggest asking as many questions as possible, get 2,3 or more  opinions from different doctors. Read and learn as much information on the disease or genetic malformation as possible. Then try to look at all the possible outcomes and the likelyhood of each. How would you feel and cope with each one. Speak to you partner, family or friends (anyone you feel comfortable with). Go into your decision knowing that it is the best one for you.